Thursday, October 23, 2014

Peeling Back the Mask of Sensory Processing Disorder

One late October morning, while all of my children were at school, I embarked on a motherly mission to find a very specific Halloween costume for one of those kids. My highly-sensitive, hates-the-way-everything-feels-on-his-body, usually-never-wears-a-Halloween-costume, seven-year-old kid. I cannot tell you how thrilled I was that he actually chose to wear a costume this year! I was more than happy to spend my teensy weensy bit of free time that morning walking the aisles of Party City in search of the highly sought-after Green Ninja garb.

In the past, as any parent with sensitive children knows, Halloween has caused some major trauma in our family. We've had screaming, kicking, crying, yelling, fighting, all of which ends up with the child not wearing a costume anyway...obviously.

Our first glimpse into the world of no-costume Halloweens was when Trixie was just a toddler. We were living in Japan and were preparing to go trick-or-treating in the neighborhood surrounding the kids' International preschool. I was attempting to adorn her and Reese in their adorably plush Disney Store Pooh and Tigger costumes, which my mom had sent over from America. Trixie had such a major meltdown that I actually had to cut her out of the costume. Scissors went straight up the back of that sucker so I could peel it off of her, because she was so far into her sensory tantrum that there was no other way out of it. My kids were the only Americans in their school (the only kids who actually celebrated Halloween), and yet they showed up wearing pumpkin shirts instead of costumes to trick-or-treat.

Little did I know that our third child would also have such severe issues with his sensory system. Most parents whose children process their senses in a typical way can't imagine that other children do not find dressing up for Halloween to be fun and exciting. For those of us with sensitive kids, we accept their reality that Halloween costumes are annoying and itchy and hard and just feel wrong. It takes patience, and sometimes it can take years for parents to figure out just what is happening with our children's body systems.

Have you been there? Have you learned what works for them or are you still in the phase of wondering what the heck is happening?

As our parenting progressed, we, too, progressed at how quickly we could recognize the signs of sensory processing issues. Now, we just know what to expect, when to expect it, and we've learned to let the children guide most of what goes on their bodies. Whether or not our kids will wear a Halloween costume is always a toss-up. After I experienced the horror of slicing that brand new Winnie the Pooh to pieces, I happily vowed never to buy a Disney Store costume again.

One year, Chip decided to go as a stealth ninja for Halloween. Sounds like a costume, right? Well, actually, he just meant that he would wear all black clothing that was already part of his every day wardrobe. The next year, he was a soccer player. Again, nothing extra or unusual, just wearing his normal gym pants and his park league soccer t-shirt.

Does it matter to us what kind of costume or not-really-a-costume our kids wear for Halloween? Absolutely not. We want them to be comfortable and have fun, just like everybody else. However, early this September, we noticed a small shift in Chip's mentality. He started to talk about not wanting to wear anything at all this year, and then not wanting to go trick-or-treating. What was breaking my heart was that his sensitivity was going to start to hinder him.

Maybe some parents would find skipping trick-or-treat a good thing and not worth mourning. For us, it was a sad time, because we knew that Chip really did not want to give it up yet. He's only seven, and that kid LOVES candy. He craves it and sneaks it and devours it, and, well, he just loves it. All of his friends and sibs were growing excited for Halloween, yet he was unable to feel that happy anticipation due to his anxious sensitivity.

About two weeks before Halloween, Chip surprised us by quietly stating that he changed his mind and was planning to wear an actual costume this year. He had deduced that if he skipped any kind of costume and thus skipped trick-or-treating, he would not be receiving any candy of his own. His brothers and sister would not be obligated to share their stash with him, and he knew the rule:

No costume=no trick-or-treat=no candy. 

He had seen the Green Ninja costume in the Party City catalog, and somehow, he set his mind on that one. Something about Lego Ninjago, of course, because it's all the rage in second grade. When I found the costume in the store and looked at all of its layers and pieces, I didn't know how he would react when I brought it home. Would he willingly put it on over his clothes or exclaim that it bothered his skin or felt too tight? Parents with sensitive kids will rejoice with me when I tell you that Chip was ecstatic to see his Green Ninja costume waiting at his kitchen table seat after school. (We do have assigned seats at the dinner table-I highly recommend it to anyone with little ones who argue over where to sit). He put it straight on over his clothes and did not take it off until bedtime!

 
This night was a true reason to celebrate for my sensitive son. He shared with me how soft his new costume felt inside and that he could be like a real ninja while he was wearing it. He jumped, kicked, twisted and flailed, but this time, it was all in the name of play-fighting with Marshall. It was not to try to take off a costume that caused pain or frustration.

This weekend will be a special Halloween event at his school, where Chip can show off his new costume to all of the friends who don't live in our neighborhood. No more walking through the costume parade at school with kids asking him, "Chip, what are you supposed to be?" It will be glaringly obvious. He is a Green Ninja, and his mama is so proud of him!

To be honest, Halloween isn't the only time we struggle around here. We've come to realize that each child in our family has a varying degree of these feelings when it comes to what goes on or into their bodies. Their sensory processing struggles not only affect their clothing choices all year, but can also inhibit their abilities to enjoy food, sunlight and especially sound. As their parents, we can only do our best to guide them with ways to navigate the world that they inhabit. This year, Chip was able to place his love of candy above his fear of the unknown...that very scary world of Halloween costume discomfort.




I decided to dedicate this topic to a 3 part series. Please read my other two sections in Peeling Back the Mask of Sensory Processing Disorder:

Making Strides and Setbacks at Halloween (Part 2)

3 Rules to Navigating a New Stage of Parenting (Part 3)


If you have a child with autism or sensory processing disorder, how have you handled the struggles? What are you hoping to learn from other parents' experiences? Let's share how we have managed this issue in the comments section.


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2 comments:

  1. Elizabeth, thank you for this great post. Seeing the photo of your green ninja made my heart so very happy! I feel your heartbreak at his struggles and cheer along side of you with each success. This post was timed perfectly for me. Just last night I had a little one in tears over the"Team Work Makes the Dream Work" shirt. It has 3/4 sleeves!!!!!!! He so desperately wanted to wear it, but he physically couldn't. He didn't want to be the only one without the special shirt, but he could not bring himself to put it on his body. After a little brainstorming with my mom, we chopped off the sleeves. He was a happy camper. He got to wear the shirt and it now has short sleeves. Keep up the great work with your kiddos and thanks for this encouragement and reminder!

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    1. I am so glad you cut off the sleeves! As I was reading your comment, I was trying to read faster and faster to get to the part where you'd say, "We just cut them off!" Good for you and Nana!! My Trixie did not wear hers this morning, because it was too baggy and long for her liking. Ah well. That's life. Guess how many times our red preschool t-shirt and sweatshirt have been worn? A big fat zero! In six years. I love that we have each other to share stories. I'm always here for you, babe!

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